Spina Bifida

Spina bifida is a birth defect that includes the incomplete development of the spinal cord, the brain, and/or the coverings of both in an embryo at the end of its first month. Literally meaning “cleft” or “split” spine, spina bifida occurs when the two sides of the spinal cord of the embryo fail to join together, leaving an opening, the severity of which varies from child to child. Although categorization of each type varies, the typical agreement is that this opening leads to the diagnosis of three types of spina bifida: occulta, meningocele, and myelomeningocele.

Spina Bifida Association – An excellent resource, the SBA has been serving children and adults with Spina Bifida and their families since its conception in 1973, focusing on education, advocacy, research, and service.

SPINAbilities – An excellent resource for adolescents and young adults, offering advice on friendships, embarrassing situations, dating, and more.

National Institute of Neurological Disorders and Stroke